Surveillance Guidelines and Standards
The committee was established to develop and promote the use of
a uniform set of recommendations and standards for the collection,
analysis, and reporting of birth defect surveillance data. These
standards are intended to serve as resource for birth defect
surveillance programs to improve the operations and usefulness
of their system for birth defects monitoring and prevention.
The Guidelines were published
in June 2004. The committee is creating several workgroups whose
activities will include evaluating/improving/adding chapters,
exploring/developing other technical tools for abstractors, and
addressing questions about or exploring issues with coding/coding
of 2005, the Surveillance Guidelines and Standards Committee released
a survey designed to measure user impressions of the Guidelines.
In January of 2006, a focus group was interviewed at the annual
meeting of the NBDPN. A
summary of the results can be found here.
In April of 2007, the Surveillance Guidelines
and Standards Committee surveyed state contacts on their data collection
methods and resources. The
results of this survey can be found here.
Chair: Miland Palmer