National Birth Defects Prevention Network
We're on a mission to establish and maintain a national network of state and population-based programs for birth defects surveillance and research.
latest updates
guidelines
The technical guidelines in this document consist of a series of chapters covering the fundamental aspects of developing, planning, implementing, and conducting surveillance for birth defects and using the resulting data
Annual Reports
The annual report includes directory information for birth defects programs, state-specific data on 45 selected birth defects, and journal articles on birth defects surveillance and epidemiology.
data tables
State-specific counts and prevalence of birth defects and a directory of state-based birth defects surveillance programs. Publication date: January 2024
projects
The National Birth Defects Prevention Network helps facilitate collaborative projects that utilize data from state birth defects registries.
Become a part of our mission
As a member of the National Birth Defects Prevention Network (NBDPN), you will join an international group of individuals dedicated to birth defects surveillance, research, and prevention.
NBDPN members receive:
- Access to the "Members Only" section of the NBDPN web site where you can:
- View exclusive resources including:
- Birth defects coding questions & answers
- Tips for presenting data
- Statistical computer programs & data sets
- Many archived NBDPN webinars and their handouts (topics include Syndromes Associated with Heart Defects, Deciphering Diagnostic Tools for Heart Defects, Tips on Coding Heart Defects, etc.)
- A free copy of the NBDPN Annual Report, published as the "Congenital Malformations Surveillance Report: A Report from the National Birth Defects Prevention Network" in the journal Birth Defects Research, Part A. Plus, get advance information on its "Call for manuscripts"
- Advance information on the NBDPNAnnual Meeting including the “Call for Posters”
- Access to national and international expertise in birth defects
- Opportunities to participate and learn via a variety of committees and workgroups
- Update your membership information
- Search for other members
- View exclusive resources including:
Committees
- Health Promotions (HP) Committee
- Program & Professional Development (PPD) Committee
- Surveillance Data Committee (SDC)
- Surveillance Guidelines & Standards Committee (SGSC)
- Operations Committee (OC)
NBDPN Strategic Plan
We welcome all members to view the 2024-2028 Strategic Plan, found here. Input on themes, goals, and deliverables is welcome from all members.
Become a part of our mission
As a member of the National Birth Defects Prevention Network (NBDPN), you will join an international group of individuals dedicated to birth defects surveillance, research, and prevention.
NBDPN members receive:
- Access to the "Members Only" section of the NBDPN web site where you can:
- View exclusive resources including:
- Birth defects coding questions & answers
- Tips for presenting data
- Statistical computer programs & data sets
- Many archived NBDPN webinars and their handouts (topics include Syndromes Associated with Heart Defects, Deciphering Diagnostic Tools for Heart Defects, Tips on Coding Heart Defects, etc.)
- A free copy of the NBDPN Annual Report, published as the "Congenital Malformations Surveillance Report: A Report from the National Birth Defects Prevention Network" in the journal Birth Defects Research, Part A. Plus, get advance information on its "Call for manuscripts"
- Advance information on the NBDPNAnnual Meeting including the “Call for Posters”
- Access to national and international expertise in birth defects
- Opportunities to participate and learn via a variety of committees and workgroups
- Update your membership information
- Search for other members
- View exclusive resources including:
Committees
- Health Promotions (HP) Committee
- Program & Professional Development (PPD) Committee
- Surveillance Data Committee (SDC)
- Surveillance Guidelines & Standards Committee (SGSC)
- Operations Committee (OC)
NBDPN Strategic Plan
We welcome all members to view the 2024-2028 Strategic Plan, found here. Input on themes, goals, and deliverables is welcome from all members.
Upcoming Event/Monthly Recognitions
World Down Syndrome Day is observed globally on March 21 to raise awareness and amplify the voices of individuals with Down syndrome, as well as the friends, families, and communities who support them. On this day, we celebrate people with an extra chromosome and honor the unique perspectives and contributions they bring to the world. It is also an opportunity to strengthen inclusive support systems and ensure that individuals with Down syndrome have access to the care, education, and opportunities they deserve.
Check out our Health Awareness Calendar to see more observances
March 21st
World Down Syndrome Day