Utah
Birth Defects Counts and Prevalence 2018-2022 (Prevalence per 10,000 Live Births)
Defect
Maternal Race/Ethnicity
Total * Notes
White,
Non-Hispanic
Black,
Non-Hispanic
Hispanic,
Non-Hispanic
Asian or
Pacific Islander,
Non-Hispanic
American Indian
or Alaskan Native,
Non-Hispanic
Anencephaly 34 (2.1) 0 (0.0) <11 (†) <11 (†) 0 (0.0) 46 (2.0)
Anophthalmia / microphthalmia 26 (1.6) 0 (0.0) 11 (2.7) <11 (†) <11 (†) 43 (1.9)
Anotia / microtia 53 (3.2) 0 (0.0) 32 (7.8) <11 (†) <11 (†) 100 (4.3)
Aortic valve stenosis 65 (4.0) <11 (†) 12 (2.9) <11 (†) <11 (†) 87 (3.7)
Atrial septal defect 514 (31.3) <11 (†) 165 (40.0) 25 (30.8) <11 (†) 734 (31.6)
Atrioventricular septal defect (endocardial cushion defect) 88 (5.4) <11 (†) 12 (2.9) <11 (†) 0 (0.0) 107 (4.6)
Biliary atresia <11 (†) <11 (†) <11 (†) <11 (†) <11 (†) 20 (0.9)
Bladder exstrophy <11 (†) 0 (0.0) <11 (†) 0 (0.0) 0 (0.0) <11 (†)
Choanal atresia 19 (1.2) 0 (0.0) <11 (†) <11 (†) 0 (0.0) 25 (1.1)
Cleft lip alone (without cleft palate) 74 (4.5) 0 (0.0) 26 (6.3) <11 (†) <11 (†) 115 (5.0)
Cleft lip with cleft palate 126 (7.7) <11 (†) 30 (7.3) <11 (†) <11 (†) 172 (7.4)
Cleft palate alone (without cleft lip) 127 (7.7) <11 (†) 34 (8.2) <11 (†) <11 (†) 177 (7.6)
Cloacal exstrophy <11 (†) 0 (0.0) 0 (0.0) 0 (0.0) 0 (0.0) <11 (†)
Coarctation of aorta 176 (10.7) <11 (†) 37 (9.0) <11 (†) <11 (†) 229 (9.9)
Common truncus (truncus arteriosus or TA) <11 (†) 0 (0.0) <11 (†) 0 (0.0) <11 (†) 16 (0.7)
Congenital cataract 67 (4.1) <11 (†) 12 (2.9) <11 (†) <11 (†) 85 (3.7)
Congenital posterior urethral valves <11 (†) <11 (†) <11 (†) 0 (0.0) 0 (0.0) 14 (1.2) 1
Craniosynostosis 224 (13.7) <11 (†) 43 (10.4) <11 (†) <11 (†) 282 (12.1)
Deletion 22q11.2 30 (1.8) <11 (†) <11 (†) <11 (†) <11 (†) 42 (1.8)
Dextro-Transposition of great arteries (d-TGA) 56 (3.4) 0 (0.0) <11 (†) <11 (†) 0 (0.0) 70 (3.0)
Diaphragmatic hernia 67 (4.1) 0 (0.0) 18 (4.4) <11 (†) 0 (0.0) 95 (4.1)
Double outlet right ventricle (DORV) 44 (2.7) <11 (†) 11 (2.7) <11 (†) <11 (†) 64 (2.8)
Ebstein anomaly 21 (1.3) <11 (†) <11 (†) <11 (†) 0 (0.0) 32 (1.4)
Encephalocele 20 (1.2) 0 (0.0) <11 (†) <11 (†) 0 (0.0) 24 (1.0)
Esophageal atresia / tracheoesophageal fistula 64 (3.9) <11 (†) <11 (†) <11 (†) 0 (0.0) 84 (3.6)
Gastroschisis 50 (3.0) 0 (0.0) 25 (6.1) <11 (†) 0 (0.0) 82 (3.5)
Holoprosencephaly 27 (1.6) 0 (0.0) <11 (†) <11 (†) <11 (†) 38 (1.6)
Hypoplastic left heart syndrome 67 (4.1) <11 (†) 18 (4.4) <11 (†) 0 (0.0) 93 (4.0)
Hypospadias 631 (75.0) <11 (†) 76 (36.1) 21 (51.8) <11 (†) 751 (63.1) 1
Interrupted aortic arch (IAA) <11 (†) <11 (†) <11 (†) <11 (†) <11 (†) 17 (0.7)
Limb deficiencies (reduction defects) 108 (6.6) 0 (0.0) 32 (7.8) <11 (†) <11 (†) 152 (6.5)
Omphalocele 52 (3.2) 0 (0.0) 12 (2.9) <11 (†) 0 (0.0) 67 (2.9)
Pulmonary valve atresia 18 (1.1) <11 (†) 12 (2.9) <11 (†) 0 (0.0) 34 (1.5)
Pulmonary valve atresia and stenosis 289 (17.6) <11 (†) 77 (18.7) 17 (20.9) <11 (†) 402 (17.3)
Rectal and large intestinal atresia / stenosis 74 (4.5) <11 (†) 14 (3.4) <11 (†) 0 (0.0) 94 (4.0)
Renal agenesis / hypoplasia 98 (6.0) <11 (†) 22 (5.3) <11 (†) <11 (†) 130 (5.6)
Single ventricle <11 (†) 0 (0.0) 0 (0.0) <11 (†) 0 (0.0) <11 (†)
Small intestinal atresia / stenosis 54 (3.3) <11 (†) 22 (5.3) <11 (†) <11 (†) 89 (3.8)
Spina bifida without anencephaly 66 (4.0) <11 (†) 15 (3.6) <11 (†) 0 (0.0) 84 (3.6)
Tetralogy of Fallot (TOF) 69 (4.2) <11 (†) 12 (2.9) <11 (†) <11 (†) 87 (3.7)
Total anomalous pulmonary venous connection (TAPVC) 32 (2.0) 0 (0.0) <11 (†) <11 (†) 0 (0.0) 43 (1.9)
Transposition of the great arteries (TGA) 63 (3.8) 0 (0.0) <11 (†) <11 (†) 0 (0.0) 80 (3.4)
Tricuspid valve atresia <11 (†) <11 (†) <11 (†) <11 (†) <11 (†) 17 (0.7)
Tricuspid valve atresia and stenosis 15 (0.9) <11 (†) <11 (†) <11 (†) <11 (†) 23 (1.0)
Trisomy 13 30 (1.8) 0 (0.0) <11 (†) <11 (†) 0 (0.0) 42 (1.8)
Trisomy 18 57 (3.5) <11 (†) 13 (3.2) <11 (†) <11 (†) 76 (3.3)
Trisomy 21 (Down syndrome) 276 (16.8) <11 (†) 111 (26.9) 21 (25.9) <11 (†) 429 (18.5)
Turner syndrome 52 (6.5) <11 (†) 17 (8.4) <11 (†) 0 (0.0) 78 (6.9) 2
Ventricular septal defect 429 (26.1) <11 (†) 143 (34.7) 24 (29.6) <11 (†) 626 (27.0)
Total live births 164070 2769 41252 8119 1684 232260 3
Male Live Births 84141 1458 21058 4053 873 119023
Female Live Births 79929 1309 20194 4066 811 113234
Notes
1- Data for this condition include male and unknown infant sex cases only. Prevalence is calculated per 10,000 male live births.
2- Data for this condition include female and unknown infant sex cases only. Prevalence is calculated per 10,000 female live births.
3- Data for total live births include unknown infant sex.

General comments
†- Counts <11 and associated prevalences are suppressed
*- Data for totals include unknown/other race
Utah
Birth Defects Counts and Prevalence 2018-2022 (Prevalence per 10,000 Live Births)
Defect
Maternal Age
Total *
Less than 35 years 35 of more years
Gastroschisis 79 (4.0) <11 (†) 82 (3.5)
Trisomy 13 27 (1.4) 15 (4.2) 42 (1.8)
Trisomy 18 38 (1.9) 38 (10.7) 76 (3.3)
Trisomy 21 (Down syndrome) 213 (10.8) 216 (60.8) 429 (18.5)
Total live births 196739 35514 232260
Notes
†- Counts <11 and associated prevalences are suppressed
*- Data for totals include unknown/other maternal age
Utah
Notes on Specific Birth Defects
Defect Site Comment
Atrial septal defect ASD is only collected if another defect is present
Clubfoot UBDN does not collect data on clubfoot
Universal comment Spontaneous abortion not reported