Birth Defects Data Tables and Directory, Jan. 2024
The first Congenital Malformations Surveillance Report was published by the National Birth Defects Prevention Network (NBDPN) in 1997. The NBDPN then began publishing state-specific counts and prevalence of birth defects and a directory of state-based birth defects surveillance programs on an annual basis in 2000. This information was first published in the journal Birth Defects Research Part A and later in the journal Birth Defects Research. Beginning in 2022, these reports have been published on a biennial basis on the NBDPN website (nbdpn.org).
Available PDFs:
Individual State PDFs (Data Tables, Directory, or Combined)
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Alabama
Year Started
- Anticipated 2023
Population Covered Annually
- 58,000
Surveillance Method
- Passive case-finding without chart abstraction for case validation
PDFs
Alaska
Year Started
- 1996
Population Covered Annually
- 9,500
Surveillance Method
- Passive case-finding with limited case confirmation
PDFs
Directory • Data by Race/Ethnicity • Data by Age
Arizona
Year Started
- 1986
Population Covered Annually
- 87,000
Surveillance Method
- Active Case Finding, Passive case-finding with case confirmation
Directory • Data by Race/Ethnicity • Data by Age
Arkansas
Year Started
- 1980
Population Covered Annually
- 36,000
Surveillance Method
- Active Case Finding
Directory • Data by Race/Ethnicity • Data by Age
California
Year Started
- 1983
Population Covered Annually
- 130,000
Surveillance Method
- Active Case Finding
Directory • Data by Race/Ethnicity • Data by Age
CDC/MACDP
Year Started
- 1967
Population Covered Annually
- 35,000
Surveillance Method
- Active Case Finding
Colorado
Year Started
- 1988
Population Covered Annually
- 63,455 (2018)
Surveillance Method
- Passive case-finding without case confirmation
Connecticut
Year Started
- 2002
Population Covered Annually
- 37,000
Surveillance Method
- Passive case-finding without case confirmation
Delaware
Year Started
- 1967
Population Covered Annually
- 11,000
Surveillance Method
- Active Case Finding
DOD
Year Started
- 1998
Population Covered Annually
- Approximately 100,000 per year
Surveillance Method
- See Directory for details
DC
Florida
Year Started
- 1998
Population Covered Annually
- 210,581 in 2020
Surveillance Method
- See Directory for details
Georgia
Year Started
- 2018
Population Covered Annually
- 126,001 live births in 2022
Surveillance Method
- See Directory for details
Hawaii
Year Started
- 1988
Population Covered Annually
- 19,000
Surveillance Method
- Active Case Finding
Indiana
Illinois
Year Started
- 1986
Population Covered Annually
- 145,000
Surveillance Method
- Passive case-finding with case confirmation
Indianapolis
Year Started
- 2002
Population Covered Annually
- 83,000
Surveillance Method
- See Directory for details
Iowa
Year Started
- 1983
Population Covered Annually
- 37,781 average live births per year (2016-2020)
Surveillance Method
- Active Case Finding
Kansas
Year Started
- 1985
Population Covered Annually
- 34,697
Surveillance Method
- Passive case-finding with case confirmation
Kentucky
Year Started
- 1998
Population Covered Annually
- 56,000
Surveillance Method
- Passive case-finding with case confirmation
Louisiana
Year Started
- 2005
Population Covered Annually
- 58,000
Surveillance Method
- Active Case Finding, Combination of active and passive case ascertainment, population based
Maine
Year Started
- 1999
Population Covered Annually
- 12,000
Surveillance Method
- Passive case ascertainment with active case confirmation
Maryland
Year Started
- 1983
Population Covered Annually
- 75,000
Surveillance Method
- Passive case-finding with case confirmation
Massachusetts
Year Started
- 1997
Population Covered Annually
- 69,000
Surveillance Method
- Active Case Finding
Michican
Year Started
- 1992
Population Covered Annually
- 110,000
Surveillance Method
- Passive case-finding with case confirmation
Minnesota
Year Started
- 2005
Population Covered Annually
- 70,000
Surveillance Method
- Active Case Finding
Mississippi
Year Started
- 2000
Population Covered Annually
- 38,000
Surveillance Method
- Passive case-finding without case confirmation
Missouri
Year Started
- 1985
Population Covered Annually
- 70,000
Surveillance Method
- Passive case-finding without case confirmation, Population-based
Montana
Nebraska
Year Started
- 1972
Population Covered Annually
- 26,000
Surveillance Method
- Passive case-finding without case confirmation
Nevada
Year Started
- 2000
Population Covered Annually
- 35,166
Surveillance Method
- Passive case-finding with case confirmation
New Hampshire
Year Started
- 2018
Population Covered Annually
- 12,500
Surveillance Method
- Active Case Finding, Passive case-finding with case confirmation
New Jersey
Year Started
- 1928
Population Covered Annually
- ~100,000
Surveillance Method
- See Directory for details
New Mexico
Year Started
- 1995
Population Covered Annually
- 21,000
Surveillance Method
- Passive case-finding with case confirmation for selected defects
New York
Year Started
- 1982
Population Covered Annually
- ~228,000
Surveillance Method
- Combination of active and passive case ascertainment; population-based
North Carolina
Year Started
- 1987
Population Covered Annually
- 120,000
Surveillance Method
- Active Case Finding
North Dakota
Year Started
- 2002
Population Covered Annually
- 9,557
Surveillance Method
- Passive case-finding without confirmation
Ohio
Year Started
- 2006
Population Covered Annually
- 129,000
Surveillance Method
- Passive case-finding with case confirmation, Passive case-finding without case confirmation
Oklahoma
Year Started
- 1992
Population Covered Annually
- 50,800 (ave 1994-2020)
Surveillance Method
- Active Case Finding
Oregon
Year Started
- 2013
Population Covered Annually
- 42,000
Surveillance Method
- Passive case-finding without case confirmation
Pennsylvania
Year Started
- 2017
Population Covered Annually
- 130,730
Surveillance Method
- Passive case-finding with case confirmation
Puerto Rico
Year Started
- 1995
Population Covered Annually
- 20,000
Surveillance Method
- Active Case Finding
Rhode Island
Year Started
- 2000
Population Covered Annually
- 56,668
Surveillance Method
- Active Case Finding
South Carolina
Year Started
- GGC began monitoring in 1992; transitioned to SC DHEC and expanded in 2006
Population Covered Annually
- 56,668
Surveillance Method
- Active Case Finding
South Dakota
Tennessee
Year Started
- 2000
Population Covered Annually
- 80,326
Surveillance Method
- Passive case-finding with case confirmation, Passive case-finding without case confirmation
Texas
Year Started
- 1994
Population Covered Annually
- 377,710 in 2019
Surveillance Method
- Active Case Finding, Population-based, includes entire state
Utah
Year Started
- 1994
Population Covered Annually
- 47,766 (2016-2020 for resident births)
Surveillance Method
- Combination of active and passive case ascertainment; population-based
Vermont
Year Started
- 2006
Population Covered Annually
- 6,000
Surveillance Method
- Passive case-finding with case confirmation
Virginia
Year Started
- 1985
Population Covered Annually
- 95,647
Surveillance Method
- Passive case-finding without case confirmation
Washington
Year Started
- 1986 (active), 1991 (passive)
Population Covered Annually
- 85,000 (estimated)
Surveillance Method
- Passive case-finding without case confirmation
West Virginia
Year Started
- 1989
Population Covered Annually
- 18,000
Surveillance Method
- Passive case-finding without case confirmation
Wisconsin
Year Started
- 2004
Population Covered Annually
- 64,000 (average)
Surveillance Method
- See Directory for details