Birth Defects Data Tables and Directory, Jan. 2024

The first Congenital Malformations Surveillance Report was published by the National Birth Defects Prevention Network (NBDPN) in 1997. The NBDPN then began publishing state-specific counts and prevalence of birth defects and a directory of state-based birth defects surveillance programs on an annual basis in 2000. This information was first published in the journal Birth Defects Research Part A and later in the journal Birth Defects Research. Beginning in 2022, these reports have been published on a biennial basis on the NBDPN website (nbdpn.org).

Available PDFs:

Home Birth Defects Data Tables and Directory

Individual State PDFs (Data Tables, Directory, or Combined)

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Alabama

Year Started

  • Anticipated 2023

Population Covered Annually

  • 58,000

Surveillance Method

  • Passive case-finding without chart abstraction for case validation

PDFs

Directory

Alaska

Year Started

  • 1996

Population Covered Annually

  • 9,500

Surveillance Method

  • Passive case-finding with limited case confirmation

PDFs

Directory • Data by Race/Ethnicity • Data by Age

Arizona

Year Started

  • 1986

Population Covered Annually

  • 87,000

Surveillance Method

  • Active Case Finding, Passive case-finding with case confirmation

PDFs

Directory • Data by Race/Ethnicity • Data by Age

Arkansas

Year Started

  • 1980

Population Covered Annually

  • 36,000

Surveillance Method

  • Active Case Finding

PDFs

Directory • Data by Race/EthnicityData by Age

California

Year Started

  • 1983

Population Covered Annually

  • 130,000

Surveillance Method

  • Active Case Finding

PDFs

DirectoryData by Race/EthnicityData by Age

CDC/MACDP

Year Started

  • 1967

Population Covered Annually

  • 35,000

Surveillance Method

  • Active Case Finding

PDFs

DirectoryData by Race/EthnicityData by Age

Colorado

Year Started

  • 1988

Population Covered Annually

  • 63,455 (2018)

Surveillance Method

  • Passive case-finding without case confirmation

PDFs

DirectoryData by Race/Ethnicity • Data by Age

Connecticut

Year Started

  • 2002

Population Covered Annually

  • 37,000

Surveillance Method

  • Passive case-finding without case confirmation

PDFs

Directory

Delaware

Year Started

  • 1967

Population Covered Annually

  • 11,000

Surveillance Method

  • Active Case Finding

PDFs

DirectoryData by Race/Ethnicity • Data by Age

DOD

Year Started

  • 1998

Population Covered Annually

  • Approximately 100,000 per year

Surveillance Method

  • See Directory for details

PDFs

DirectoryData by Race/EthnicityData by Age

DC

Year Started

  • -

Population Covered Annually

  • -

Surveillance Method

  • -

PDFs

Directory

Florida

Year Started

  • 1998

Population Covered Annually

  • 210,581 in 2020

Surveillance Method

  • See Directory for details

PDFs

DirectoryData by Race/EthnicityData by Age

Georgia

Year Started

  • 2018

Population Covered Annually

  • 126,001 live births in 2022

Surveillance Method

  • See Directory for details

PDFs

Directory

Hawaii

Year Started

  • 1988

Population Covered Annually

  • 19,000

Surveillance Method

  • Active Case Finding

PDFs

Directory • Data by Race/Ethnicity • Data by Age

Indiana

Year Started

  • -

Population Covered Annually

  • -

Surveillance Method

  • -

PDFs

Directory

Illinois

Year Started

  • 1986

Population Covered Annually

  • 145,000

Surveillance Method

  • Passive case-finding with case confirmation

PDFs

DirectoryData by Race/EthnicityData by Age

Indianapolis

Year Started

  • 2002

Population Covered Annually

  • 83,000

Surveillance Method

  • See Directory for details

PDFs

DirectoryData by Race/EthnicityData by Age

Iowa

Year Started

  • 1983

Population Covered Annually

  • 37,781 average live births per year (2016-2020)

Surveillance Method

  • Active Case Finding

PDFs

DirectoryData by Race/EthnicityData by Age

Kansas

Year Started

  • 1985

Population Covered Annually

  • 34,697

Surveillance Method

  • Passive case-finding with case confirmation

PDFs

Directory • Data by Race/Ethnicity • Data by Age

Kentucky

Year Started

  • 1998

Population Covered Annually

  • 56,000

Surveillance Method

  • Passive case-finding with case confirmation

PDFs

DirectoryData by Race/Ethnicity • Data by Age

Louisiana

Year Started

  • 2005

Population Covered Annually

  • 58,000

Surveillance Method

  • Active Case Finding, Combination of active and passive case ascertainment, population based

PDFs

DirectoryData by Race/Ethnicity • Data by Age

Maine

Year Started

  • 1999

Population Covered Annually

  • 12,000

Surveillance Method

  • Passive case ascertainment with active case confirmation

PDFs

DirectoryData by Race/Ethnicity • Data by Age

Maryland

Year Started

  • 1983

Population Covered Annually

  • 75,000

Surveillance Method

  • Passive case-finding with case confirmation

PDFs

DirectoryData by Race/Ethnicity • Data by Age

Massachusetts

Year Started

  • 1997

Population Covered Annually

  • 69,000

Surveillance Method

  • Active Case Finding

PDFs

Directory • Data by Race/Ethnicity • Data by Age

Michican

Year Started

  • 1992

Population Covered Annually

  • 110,000

Surveillance Method

  • Passive case-finding with case confirmation

PDFs

Directory • Data by Race/Ethnicity • Data by Age

Minnesota

Year Started

  • 2005

Population Covered Annually

  • 70,000

Surveillance Method

  • Active Case Finding

PDFs

DirectoryData by Race/Ethnicity • Data by Age

Mississippi

Year Started

  • 2000

Population Covered Annually

  • 38,000

Surveillance Method

  • Passive case-finding without case confirmation

PDFs

Directory

Missouri

Year Started

  • 1985

Population Covered Annually

  • 70,000

Surveillance Method

  • Passive case-finding without case confirmation, Population-based

PDFs

DirectoryData by Race/ Ethnicity • Data by Age

Montana

Year Started

  • 1999

Population Covered Annually

  • 12,000

Surveillance Method

  • -

PDFs

Directory

Nebraska

Year Started

  • 1972

Population Covered Annually

  • 26,000

Surveillance Method

  • Passive case-finding without case confirmation

PDFs

Directory

Nevada

Year Started

  • 2000

Population Covered Annually

  • 35,166

Surveillance Method

  • Passive case-finding with case confirmation

PDFs

DirectoryData by Race/Ethnicity •
Data by Age

New Hampshire

Year Started

  • 2018

Population Covered Annually

  • 12,500

Surveillance Method

  • Active Case Finding, Passive case-finding with case confirmation

PDFs

Directory • Data by Race/Ethnicity • Data by Age

New Jersey

Year Started

  • 1928

Population Covered Annually

  • ~100,000

Surveillance Method

  • See Directory for details

PDFs

Directory • Data by Race/Ethnicity • Data by Age

New Mexico

Year Started

  • 1995

Population Covered Annually

  • 21,000

Surveillance Method

  • Passive case-finding with case confirmation for selected defects

PDFs

Directory • Data by Race/Ethnicity • Data by Age

New York

Year Started

  • 1982

Population Covered Annually

  • ~228,000

Surveillance Method

  • Combination of active and passive case ascertainment; population-based

PDFs

Directory • Data by Race/Ethnicity • Data by Age

North Carolina

Year Started

  • 1987

Population Covered Annually

  • 120,000

Surveillance Method

  • Active Case Finding

PDFs

Directory • Data by Race/Ethnicity • Data by Age

North Dakota

Year Started

  • 2002

Population Covered Annually

  • 9,557

Surveillance Method

  • Passive case-finding without confirmation

PDFs

Directory

Ohio

Year Started

  • 2006

Population Covered Annually

  • 129,000

Surveillance Method

  • Passive case-finding with case confirmation, Passive case-finding without case confirmation

PDFs

Directory

Oklahoma

Year Started

  • 1992

Population Covered Annually

  • 50,800 (ave 1994-2020)

Surveillance Method

  • Active Case Finding

PDFs

Directory • Data by Race/ Ethnicity • Data by Age

Oregon

Year Started

  • 2013

Population Covered Annually

  • 42,000

Surveillance Method

  • Passive case-finding without case confirmation

PDFs

Directory • Data by Race/ Ethnicity • Data by Age

Pennsylvania

Year Started

  • 2017

Population Covered Annually

  • 130,730

Surveillance Method

  • Passive case-finding with case confirmation

PDFs

Directory

Puerto Rico

Year Started

  • 1995

Population Covered Annually

  • 20,000

Surveillance Method

  • Active Case Finding

PDFs

Directory • Data by Race/ Ethnicity • Data by Age

Rhode Island

Year Started

  • 2000

Population Covered Annually

  • 56,668

Surveillance Method

  • Active Case Finding

PDFs

Directory • Data by Race/ Ethnicity • Data by Age

South Carolina

Year Started

  • GGC began monitoring in 1992; transitioned to SC DHEC and expanded in 2006

Population Covered Annually

  • 56,668

Surveillance Method

  • Active Case Finding

PDFs

Directory • Data by Race/ Ethnicity • Data by Age

South Dakota

Year Started

  • -

Population Covered Annually

  • -

Surveillance Method

  • -

PDFs

Directory

Tennessee

Year Started

  • 2000

Population Covered Annually

  • 80,326

Surveillance Method

  • Passive case-finding with case confirmation, Passive case-finding without case confirmation

PDFs

Directory • Data by Race/ Ethnicity • Data by Age

Texas

Year Started

  • 1994

Population Covered Annually

  • 377,710 in 2019

Surveillance Method

  • Active Case Finding, Population-based, includes entire state

PDFs

DirectoryData by Race/ Ethnicity • Data by Age

Utah

Year Started

  • 1994

Population Covered Annually

  • 47,766 (2016-2020 for resident births)

Surveillance Method

  • Combination of active and passive case ascertainment; population-based

PDFs

DirectoryData by Race/ Ethnicity • Data by Age

Vermont

Year Started

  • 2006

Population Covered Annually

  • 6,000

Surveillance Method

  • Passive case-finding with case confirmation

PDFs

Directory • Data by Race/ Ethnicity • Data by Age

Virginia

Year Started

  • 1985

Population Covered Annually

  • 95,647

Surveillance Method

  • Passive case-finding without case confirmation

PDFs

Directory • Data by Race/ Ethnicity • Data by Age

Washington

Year Started

  • 1986 (active), 1991 (passive)

Population Covered Annually

  • 85,000 (estimated)

Surveillance Method

  • Passive case-finding without case confirmation

PDFs

Directory • Data by Race/ Ethnicity • Data by Age

West Virginia

Year Started

  • 1989

Population Covered Annually

  • 18,000

Surveillance Method

  • Passive case-finding without case confirmation

PDFs

Directory • Data by Race/ Ethnicity • Data by Age

Wisconsin

Year Started

  • 2004

Population Covered Annually

  • 64,000 (average)

Surveillance Method

  • See Directory for details

PDFs

Directory

Wyoming

Year Started

  • -

Population Covered Annually

  • -

Surveillance Method

  • -

PDFs

Directory