Birth Defects Data Tables and Directory, Jan. 2024
The first Congenital Malformations Surveillance Report was published by the National Birth Defects Prevention Network (NBDPN) in 1997. The NBDPN then began publishing state-specific counts and prevalence of birth defects and a directory of state-based birth defects surveillance programs on an annual basis in 2000. This information was first published in the journal Birth Defects Research Part A and later in the journal Birth Defects Research. Beginning in 2022, these reports have been published on a biennial basis on the NBDPN website (nbdpn.org).
Available PDFs:
Individual State PDFs (Data Tables, Directory, or Combined)
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Alabama
Year Started
- Anticipated 2023
Population Covered Annually
- 58,000
Surveillance Method
- Passive case-finding without chart abstraction for case validation
PDFs
Alaska
Year Started
- 1996
Population Covered Annually
- 9,500
Surveillance Method
- Passive case-finding with limited case confirmation
Primary Contact
Chris Barnett, MS, MPH
Epidemiology Specialist II
christopher.barnett@alaska.gov
(907) 269-8097
PDFs
Directory • Data by Race/Ethnicity • Data by Age
Arizona
Year Started
- 1986
Population Covered Annually
- 87,000
Surveillance Method
- Active Case Finding, Passive case-finding with case confirmation
Primary Contact
Dianna Contreras
Program Administrator
doanna.conteras@azdhs.gov
(602) 542-7335
Directory • Data by Race/Ethnicity • Data by Age
Arkansas
Year Started
- 1980
Population Covered Annually
- 36,000
Surveillance Method
- Active Case Finding
Primary Contact
Elizabeth Sellars, MD
Medical Director
EASellars@uams.edu
(501) 364-2971
Directory • Data by Race/Ethnicity • Data by Age
California
Year Started
- 1983
Population Covered Annually
- 130,000
Surveillance Method
- Active Case Finding
Primary Contact
Valorie Eckert, MPH
CBDMP Chief
Valorie.Eckert@cdph.ca.gov
(916) 802-8687
Directory • Data by Race/Ethnicity • Data by Age
CDC/MACDP
Year Started
- 1967
Population Covered Annually
- 35,000
Surveillance Method
- Active Case Finding
Primary Contact
Ashley Smoots, MPH
Program Manager
ncq5@cdc.gov
404-718-6480
Colorado
Year Started
- 1988
Population Covered Annually
- 63,455 (2018)
Surveillance Method
- Passive case-finding without case confirmation
Primary Contact
Ashley Juhl, MSPH
Program Manager
ashley.juhl@state.co.us
Connecticut
Year Started
- 2002
Population Covered Annually
- 37,000
Surveillance Method
- Passive case-finding without case confirmation
Delaware
Year Started
- 1967
Population Covered Annually
- 11,000
Surveillance Method
- Active Case Finding
Primary Contact
Lisa Wallace, MD, MPH
Principal Investigator
Lisa.Wallace@Christianacare.org
302-301-2410
DOD
Year Started
- 1998
Population Covered Annually
- Approximately 100,000 per year
Surveillance Method
- See Directory for details
Primary Contact
Ava Marie S. Conlin, DO, MPH
Research Physican
avamarie.s.conlin.civ@health.mil
619-553-9255
DC
Florida
Year Started
- 1998
Population Covered Annually
- 210,581 in 2020
Surveillance Method
- See Directory for details
Georgia
Year Started
- 2018
Population Covered Annually
- 126,001 live births in 2022
Surveillance Method
- See Directory for details
Primary Contact
Jerusha Barton, MPH
Science Advisor
jerusha.barton@dph.ga.gov
404-463-0782
Hawaii
Year Started
- 1988
Population Covered Annually
- 19,000
Surveillance Method
- Active Case Finding
Primary Contact
Elena Kern, MSPH
Program Coordinator
elena.kern.nsw@doh.hawaii.gov
808-733-4998
Indiana
Illinois
Year Started
- 1986
Population Covered Annually
- 145,000
Surveillance Method
- Passive case-finding with case confirmation
Primary Contact
Shelly Reeter, AAS, BS
Program Manager
Shelly.K.Reeter@illinois.gov
217-785-7133
Indianapolis
Year Started
- 2002
Population Covered Annually
- 83,000
Surveillance Method
- See Directory for details
Iowa
Year Started
- 1983
Population Covered Annually
- 37,781 average live births per year (2016-2020)
Surveillance Method
- Active Case Finding
Primary Contact
Paul A. Romitti, Ph.D.
Director
paul-romitti@uiowa.edu
319-384-1549
Kansas
Year Started
- 1985
Population Covered Annually
- 34,697
Surveillance Method
- Passive case-finding with case confirmation
Primary Contact
Paige Leonard
Kansas Birth Defects Program Coordinator
paige.leonard@ks.gov
785-296-6134
Kentucky
Year Started
- 1998
Population Covered Annually
- 56,000
Surveillance Method
- Passive case-finding with case confirmation
Primary Contact
Emily Ferrell, DrPH, CPH
Epidemiologist
emily.ferrell@ky.gov
502-564-2521
Louisiana
Year Started
- 2005
Population Covered Annually
- 58,000
Surveillance Method
- Active Case Finding, Combination of active and passive case ascertainment, population based
Primary Contact
Julie Johnston, BS
Program Manager
Julie.Johnston@la.gov
504-568-5682
Maine
Year Started
- 1999
Population Covered Annually
- 12,000
Surveillance Method
- Passive case ascertainment with active case confirmation
Primary Contact
Anne Watson, PhD, BSN
Newborn Health Coordinator
anne.watson@maine.gov
207-287-8188
Maryland
Year Started
- 1983
Population Covered Annually
- 75,000
Surveillance Method
- Passive case-finding with case confirmation
Primary Contact
Barbara Balazek, BSN
Nurse Manager
barbara.balazek1@maryland.gov
Massachusetts
Year Started
- 1997
Population Covered Annually
- 69,000
Surveillance Method
- Active Case Finding
Primary Contact
Mahsa Yazdy, Ph.D., MPH
Director, Div for Family Health Data Analytics
mahsa.yazdy@mass.gov
857-393-1785
Michigan
Year Started
- 1992
Population Covered Annually
- 110,000
Surveillance Method
- Passive case-finding with case confirmation
Primary Contact
Erin Cooper, MPH
Manager
cooperE5@michigan.gov
517-335-8384
Minnesota
Year Started
- 2005
Population Covered Annually
- 70,000
Surveillance Method
- Active Case Finding
Primary Contact
Sook Ja Cho, PhD, MPH
Epidemiologist Principal
sook.ja.cho@state.mn.us
651-201-4931
Mississippi
Year Started
- 2000
Population Covered Annually
- 38,000
Surveillance Method
- Passive case-finding without case confirmation
Primary Contact
Tracie Bryant, MPH
Director, Genetics
Tracie.Bryant@msdh.ms.gov
601-576-7743
Missouri
Year Started
- 1985
Population Covered Annually
- 70,000
Surveillance Method
- Passive case-finding without case confirmation, Population-based
Primary Contact
Evan Mobley, M.S.
Research and Data Analysis Supervisor/Manager
Evan.Mobley@health.mo.gov
573-751-6206
Montana
Nebraska
Year Started
- 1972
Population Covered Annually
- 26,000
Surveillance Method
- Passive case-finding without case confirmation
Primary Contact
Derek Ross, B.S. Chemistry
Birth Defect Registry Health Data Coordinator
derek.ross@nebraska.gov
531-530-7456
Nevada
Year Started
- 2000
Population Covered Annually
- 35,166
Surveillance Method
- Passive case-finding with case confirmation
New Hampshire
Year Started
- 2018
Population Covered Annually
- 12,500
Surveillance Method
- Active Case Finding, Passive case-finding with case confirmation
New Jersey
Year Started
- 1928
Population Covered Annually
- ~100,000
Surveillance Method
- See Directory for details
Primary Contact
Lisa Stout, BSN, RN
Nursing Consultant
lisa.stout@doh.nj.gov
609-292-5676
New Mexico
Year Started
- 1995
Population Covered Annually
- 21,000
Surveillance Method
- Passive case-finding with case confirmation for selected defects
New York
Year Started
- 1982
Population Covered Annually
- ~228,000
Surveillance Method
- Combination of active and passive case ascertainment; population-based
Primary Contact
Sarah Fisher, PhD
Director
sarah.fisher@health.ny.gov
North Carolina
Year Started
- 1987
Population Covered Annually
- 120,000
Surveillance Method
- Active Case Finding
Primary Contact
Nina Forestieri, MPH
Branch Head
nina.forestieri@dhhs.nc.gov
984-236-7448
PDFs
North Dakota
Year Started
- 2002
Population Covered Annually
- 9,557
Surveillance Method
- Passive case-finding without confirmation
Ohio
Year Started
- 2006
Population Covered Annually
- 129,000
Surveillance Method
- Passive case-finding with case confirmation, Passive case-finding without case confirmation
Primary Contact
Angela Allen, PhD, MPH
Epidemiology Investigation Supervisor
Angela.Allen@odh.ohio.gov
380-235-2921
Oklahoma
Year Started
- 1992
Population Covered Annually
- 50,800 (ave 1994-2020)
Surveillance Method
- Active Case Finding
Primary Contact
Lindsay Denson, PhD in Epidemiology, BS in Diagnostic Medical Sonography
Program Manager
LindsayXD@health.ok.gov
405-462-8219
Oregon
Year Started
- 2013
Population Covered Annually
- 42,000
Surveillance Method
- Passive case-finding without case confirmation
Primary Contact
Vivian Siu, MPH, MURP
Research Analyst
vivian.w.siu@oha.oregon.gov
971-334-1949
Pennsylvania
Year Started
- 2017
Population Covered Annually
- 130,730
Surveillance Method
- Passive case-finding with case confirmation
Puerto Rico
Year Started
- 1995
Population Covered Annually
- 20,000
Surveillance Method
- Active Case Finding
Primary Contact
Stephany Perez, MPH
Program Coordinator/Epidemiologist
stephany.perez@salud.pr.gov
787-765-2929 ext. 4571
Rhode Island
Year Started
- 2000
Population Covered Annually
- 56,668
Surveillance Method
- Active Case Finding
Primary Contact
Kristen St. John, MPH
Epidemiologist/Program Manager
Kristen.stjohn@health.ri.gov
South Carolina
Year Started
- GGC began monitoring in 1992; transitioned to SC DHEC and expanded in 2006
Population Covered Annually
- 56,668
Surveillance Method
- Active Case Finding
Primary Contact
Heather Blackwell, MA
Program Manager
blackwhr@dph.sc.gov
803-898-3885
South Dakota
Tennessee
Year Started
- 2000
Population Covered Annually
- 80,326
Surveillance Method
- Passive case-finding with case confirmation, Passive case-finding without case confirmation
Primary Contact
Katherine Lolley, MPH, CPH
Program Director
katherine.lolley@tn.gov
615-253-4145
Texas
Year Started
- 1994
Population Covered Annually
- 377,710 in 2019
Surveillance Method
- Active Case Finding, Population-based, includes entire state
Primary Contact
Madeline Kilburn, MS
Research Analyst
madeline.kilburn@dshs.texas.gov
Utah
Year Started
- 1994
Population Covered Annually
- 47,766 (2016-2020 for resident births)
Surveillance Method
- Combination of active and passive case ascertainment; population-based
Primary Contact
Stephanie Pocius, MHS
Program Manager
stephaniepocius@utah.gov
801-419-6006
Vermont
Year Started
- 2006
Population Covered Annually
- 6,000
Surveillance Method
- Passive case-finding with case confirmation
Primary Contact
Brennan Martin, MPH
BIN Coordinator
brennan.martin@vermontl.gov
802-863-7611
Virginia
Year Started
- 1985
Population Covered Annually
- 95,647
Surveillance Method
- Passive case-finding without case confirmation
Primary Contact
Christen Crews, MSN, RN
Birth Defects Surveillance Program Coordinator
christen.crews@vdh.virginia.gov
804-864-7700
Washington
Year Started
- 1986 (active), 1991 (passive)
Population Covered Annually
- 85,000 (estimated)
Surveillance Method
- Passive case-finding without case confirmation
Primary Contact
Kari Mentzer, PhD
Epidemiologist Manager
kari.mentzer@doh.wa
360-236-3459
West Virginia
Year Started
- 1989
Population Covered Annually
- 18,000
Surveillance Method
- Passive case-finding without case confirmation
Wisconsin
Year Started
- 2004
Population Covered Annually
- 64,000 (average)
Surveillance Method
- See Directory for details
Primary Contact
Melissa Olson, MS Popluation Health Sciences
Epidemiologist
melissa.olson@dhs.wisconsin.gov
608-575-1471