Resources

The mission of NBDPN is to establish and maintain a national network of state and population-based programs for birth defects surveillance and research, to identify factors that can be used to develop primary prevention strategies, and to assist families and their provider in secondary disabilities prevention. Since 1997, NBDPN has been diligently developing and disseminating resources designed to focus on specific objectives related to this Mission.  New resources are published on this site throughout the year as they are developed. 

PUBLICATIONS

Annual Reports

State Profiles

Multi-state collaborative projects

stethoscope with files

National Standards for Birth Defects Surveillance

NBDPN provides data and resources reflecting prevalence, trends, and risk factors related to birth defects. In doing so, we empower healthcare professionals and researchers to develop effective prevention strategies and improve the lives of affected individuals and families.

Birth Defects Surveillance Guidelines

Technical guidelines for the fundamental aspects of developing, planning, implementing, and conducting surveillance for birth defects and using the resulting data

Data Tables

State-specific counts and prevalence of birth defects and a directory of state-based birth defects surveillance programs

NBDPN Conferences

The National Birth Defects Prevention Network holds biennial conferences to further the understanding and awareness of how data can be collected and use to further the understanding of birth defects

ICD-10-CM and Birth Defects

Interstate Data Exchange and HIPPA

Partner Links