Projects/Committees List

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Communications & Health Promotion (CHP) Committee
Description:

The CHP Committee is responsible for facilitating, updating, and monitoring the Network communications, social networking accounts, and website. The committee also develops and participates in birth defect health observances such as Birth Defect Prevention Month, World Birth Defects Day, and Folic Acid Awareness Week.

Call Schedule/Meeting: on the fourth Wednesday @ 1PM ET of every other month (2023 dates start in Feb)

Chairs: Kristina Ottenwess and Jennifer Waldrop (Contact: NBDPN_CHP@nbdpn.org)

Workgroups:
-Birth Defects Awareness Month: TBD (seasonally)
-Folic Acid Awareness Week: TBD (seasonally)
-Social Media: Every 2nd Tuesday of the month @ 2PM ET

Details:
Via Zoom
Meeting ID: 886 4005 5866
Passcode: 515908
Dial by your location
+1 346 248 7799 US (Houston)
+1 720 707 2699 US (Denver)
+1 253 215 8782 US (Tacoma)
+1 312 626 6799 US (Chicago)
+1 646 558 8656 US (New York)
+1 301 715 8592 US (Washington DC)
https://us06web.zoom.us/j/88640055866?pwd=dmFjYXcrNnBNdVc2dVdKVFdpWi81dz09
Call Schedule/Meeting: on the fourth Wednesday of every other month (2023 dates start in February)
Dates/Times:
Fourth Wednesday of every other month at 1p ET
Primary Contact:
Kristina Ottenwess and Jennifer Waldrop
Contact Email:
Program & Professional Development (PPD) Committee
Description:

The mission of the PPD Committee is to intellectually engage members and foster community, connection, and Network growth through conferences, programs, and other opportunities.

Chair(s): Dianna Contreras and Samara Viner-Brown (Contact: NBDPN_PPD@nbdpn.org)

Workgroups:
-Diversity and Inclusion
-Membership
-National Conference
-Professional
-Development and Mentoring (including planning webinars and trainings)

Primary Contact:
Dianna Contreras and Samara Viner-Brown
Contact Email:
Surveillance Data Committee (SDC)
Description:

The SDC works to facilitate the creation, presentation, and dissemination of birth defects data products made possible through pooled analyses of multi-site surveillance datasets. The committee works collaboratively across programs, states, and territories; embraces best practices for data utilization; aspires to develop the skills and expertise of members; and welcomes people of all career backgrounds, skill levels, and personal identities.

Chairs: Eirini Nestoridi and Adrian Michalski (Contact: data@nbdpn.org)

Workgroups:
-Biennial Report
-Multi-State Projects
-Data Repository Development and Maintenance
-Data Access Portal Development and Maintenance
-Analytical Practices and Guidelines

Dates/Times:
1st Thursday of every month at 3-4PM ET
Primary Contact:
Eirini Nestoridi and Adrian Michalski
Contact Email:
Surveillance Guidelines and Standards
Description:

The purpose of the of the SGSC committee is to develop and promote the use of standards and guidelines for birth defects surveillance programs in the United States and increase the quality of birth defects surveillance data. SGSC members, through participation in various workgroups and sub-committees, engage in activities such as 1) exploring, developing, and enhancing technical tools to facilitate surveillance (e.g., abstractor's handbook, Birth Defect Surveillance Guidelines); 2) addressing questions about or exploring issues with coding/coding systems (e.g., ICD-9/10 transition materials and webinars); and 3) developing, implementing, and evaluating data quality and data utilization standards.

Chairs: Amanda St. Louis and Jodi Snow (Contact: standards@nbdpn.org)

Workgroups:
-Abstractor Technical Tools
-Standards Development & Evaluation
-EHR/HL7 Standards
-Surveillance Guidelines Manual

Primary Contact:
Amanda St. Louis and Jodi Snow
Contact Email:

2020 NBDPN Meeting Content

2020

Presentation slides for the 2020 NBDPN Annual Meeting are available below. Some presentations are only available in a redacted form or are not allowed to be shared, this is indicated below by an (R) where a presentation is redacted or an (NS) where a presentation could not be shared. If you have any questions regarding the Annual Meeting please contact nbdpninc@nbdpn.org.

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Sunday, March 8, 2020

Training Workshop
 Quality control: from abstraction to database management
Jason Salemi (FL), Russell Kirby (FL), Jean Paul (JP) Tanner (FL), Ashley Dixon (FL), Charlie Shumate (TX) , Cathleen Higgins (MA), Erin Stallings (CDC)
Monday, March 9, 2020
Plenary Session: Welcome and Opening  Slides  
 2020 Annual Meeting Welcome (NS)
Building Your State Collaborations with Your MCH Partners: Collaborating for Moms and Babies  
Laura Kavanagh (HRSA)
Jonathan Webb (AMCHP)
(NS)
Around the Network  
Mahsa Yazdy (MA), Sarah Henry (MN), Nina Forestieri (NC), Dominique Heinke (MA)
Concurrent Breakout Session A  
A1. Community Concern: Investigation and Response Looking at Birth Defects and Environmental Exposures  
Peter Langlois (TX)
Laura Fox (AZ)
A2. Record Linkage: Its Role in Birth Defects Surveillance  
Jean Paul (JP) Tanner (FL)
(NS)
Jared Parrish (AK)
A3. A Different Look at NTD Prevention  
Lindsey Overman (AR) & Barbara Frohnert (MN)
Concurrent Breakout Session B  
B1. Common Challenges Among Birth Defects Abstractors  
Jodi Snow (IL), Cathleen Higgins (MA) & Julie Johnston (LA)
B2. Data Analysis Methods and Communication: Small Data, Significant Challenges  
Dominque Heinke (MA)
(NS)
Regina Nuzzo (ASA)
B3. Round Table Program Managers Session  
Mahsa Yazdy (MA) & Elizabeth McCarthy (MO)
(NS)

 

Tuesday, March 10, 2020
Plenary Session: Godfrey Oakley Awards and Clinical Plenary    Slides    
Godfrey Oakley Award: Lifetime Achievement in Birth Defects  
Disorders of the Head and Skull  
Eirini Nestoridi (MA), Gary Rogers (DC), Kim Keppler-Noreuil (DC), Sarah Obian (FL)
(NS)
Concurrent Breakout Session C  
C1. Critical Partnerships for Birth Defects Programs  
Kate Taft (AMCHP)
(NS)
Christina Chambers (OTIS)
Emily Ferrell (KY)
Aimee Roth (NM)
Kali Ottesen (UT)
Lisa Davenport (UT)
C2. Challenges in Identifying Birth Defects in Pregnancies that do not Result in a Live Birth  
Carrie Fall (IA)
Eirini Nestoridi (MA)
(NS)
Glenda Ramirez (AZ)
Concurrent Breakout Session D  
D1. Infant and Child Mortality  
Dominique Heinke (MA)
(NS)
Monica Wojcik (MA)
(R)
Wendy Nembhard (AR)
(NS)
D2. Research Updates from the Centers for Birth Defects Research and Prevention (CBDRP), National Birth Defects Prevention Study (NBDPS)  
Jenil Patel (AR), Ronnie Collins (CA), Paul Romitti (IA), Julie Petersen (MA), Meredith Howley (NY), Kristin Moore (MN)
(NS)
D3. Communications Strategies for Underserved Populations  
Sharon Moffat (MoD)
Vanessa Cardona (OR)
Lorrie Harris-Sagaribay (NC)
Wednesday, March 11, 2020
Plenary Session: Emerging Threats to Mothers and Babies, Inspirational Story, and Closing  Slides
Emerging Threats to Mothers and Babies  
Callie Howells (PA)
Umair Shah (TX)
(NS)
Inspirational Story  
Angela Forker (IN)
Closing (NS)