Resources
The mission of NBDPN is to establish and maintain a national network of state and population-based programs for birth defects surveillance and research, to identify factors that can be used to develop primary prevention strategies, and to assist families and their provider in secondary disabilities prevention. Since 1997, NBDPN has been diligently developing and disseminating resources designed to focus on specific objectives related to this Mission. New resources are published on this site throughout the year as they are developed.
PUBLICATIONS
Annual Reports
State Profiles
Multi-state collaborative projects
National Standards for Birth Defects Surveillance
Popular Resources
NBDPN provides data and resources reflecting prevalence, trends, and risk factors related to birth defects. In doing so, we empower healthcare professionals and researchers to develop effective prevention strategies and improve the lives of affected individuals and families.
Birth Defects Surveillance Guidelines
Technical guidelines for the fundamental aspects of developing, planning, implementing, and conducting surveillance for birth defects and using the resulting data
Data Tables
State-specific counts and prevalence of birth defects and a directory of state-based birth defects surveillance programs
NBDPN Conferences
The National Birth Defects Prevention Network holds biennial conferences to further the understanding and awareness of how data can be collected and use to further the understanding of birth defects
ICD-10-CM and Birth Defects
Interstate Data Exchange and HIPPA
Partner Links
Awareness
National Birth Defects AWARENESS Month
January 2025
World Birth Defects Day
March 3, 2025